• 3 Posts
  • 148 Comments
Joined 3 years ago
cake
Cake day: August 13th, 2023

help-circle

  • Yes, in my experience, aquired brain injury is one of the hardest things for people (and their families) to adapt to, but that’s a whole different kettle of fish than Down’s syndrome.

    The post talks about the ethics of pre-emptively aborting a fetus that has a high likelihood of "severe downs syndrome ", and this is something many people face irl ask the time. my point is (mainly) that people with Down’s syndrome can have a lot of joy in their lives, and bring a lot of joy to those around them, despite the fact that they will face certain struggles (as so many of us do, in our own ways). And (secondly), although it’s outside the scope of the hypothetical situation in the op, foetal tests for Down’s syndrome are notoriously unreliable.

    I’m just saying don’t be afraid. Most new parents want to avoid any chance of anything ‘wrong’ with their child, but nearly everyone has something…

    Source: have worked with children and adults with a variety of physical and intellectual disabilities, and in my own friends and family know (and care for) a multitude of neurodiverse people and those with chronic mental illness or addictions.


  • I remember my parents planning long journeys using some piece of software (AA branded I think) that would print out all your turns, intersections and distance between them (in the late 90s).

    In the mid 00s when I needed to navigate myself, I would plan it out on a map (Melways crew rise up!) and write myself prompts on paper in big writing with arrows so I could glance at it while driving.

    Basically exactly like modern sat nav but without the live traffic.











  • Wow, I knew there was a cost to context switching, but 20 mins? Wow. I guess I’ve not truly focused on anything deeply for the last decade. I aim for 25 mins at a time of sitting still and working on something, then get up and move around a bit. But I’ll usually glance at my phone a couple of times during that to check the time, see if I’ve got any messages etc.